Items Tagged ‘Bioethics’
July 1, 2020
By Susan Murphy 
In recognition of their high impact work of advancing the field of genetic risk profiling for disease risk stratification, the National Institutes of Health (NIH) has awarded Mayo Clinic researchers Iftikhar Kullo, M.D. and Richard Sharp Ph.D. part of $75 million in funding over five years to improve the role of genomics in assessing and […]
Tags: Bioethics, Cardiovascular Disease, Genetics
July 30, 2019
Community voices guide use of biobank samples in research
By Sharon Rosen
Article by Caitlin Doran Mayo Clinic supports biobanks — large collections of patient biological samples—near each of its three campuses in Arizona, Florida and Minnesota, with the goal of advancing research to broaden the understanding of health and disease. Paired with each biobank, Mayo fields a community advisory board (CAB), whose members are recruited from […]
Tags: #Arizona State University, #Bioethics at the Cinema, #Center for Individualized Medicine Bioethics Program, #Mayo Clinic Biobank, #Mountain Park Health Center, #Rochester Public Library, #Sangre Por Salud Biobank, Barry Hall, Bioethics, center for individualized medicine, Community Advisory Boards, community outreach
June 24, 2019
Medicine and Artificial Intelligence: Ethical Tensions
By Sharon Rosen
While artificial intelligence is already transforming health care by improving diagnostic accuracy and speeding the analysis of biological and genomics data to better understand disease, there are many ethical issues that should be considered. This was the message that Mayo Clinic bioethicist Richard Sharp, Ph.D., shared with attendees at the first Mayo Clinic Artificial Intelligence […]
Tags: #Artificial Intelligence, #Center for Individualized Medicine Bioethics Program, #Genomics data, #Mayo Clinic Biomedical Ethics Research Program, Bioethics, center for individualized medicine, computer models, Dr. Richard Sharp, Genetics, genomics, mayo clinic, Mayo Clinic Artificial Intelligence Symposium
February 21, 2019
Once a patient, now a research fellow: Kelsey Stuttgen, Ph.D. is paying compassion forward
By Sharon Rosen
One minute the young girl was skiing; the next she had fallen, had severe pain in her leg and was rushed to the hospital. It could have been a scary time filled with questions about the road ahead. But for Kelsey Stuttgen, Ph.D., the compassionate care delivered by her orthopedic surgeon and care team at […]
Tags: #Dr. Edward Hicks, #Dr. Kelsey Stuttgen, #Mayo Clinic Biomedical Ethics Research Program, Bioethics, Genetic Testing, genomics, mayo clinic, Mayo Clinic Center for Individualized Medicine
July 16, 2018
Bioethics in the Cinema Program celebrates our WONDERful differences
By Sharon Rosen
For many young children, the first day of the school year is filled with excitement. But for August (Auggie) Pullman and his parents, the first day of fifth grade at a public school is an anxious time. That’s because Auggie has facial differences from a genetic condition called Treacher Collins syndrome and has always been […]
Tags: #Bioethics at the Cinema, #Dr. Megan Allyse, #genetic disorders, #Mayo Clinic Biomedical Ethics Research Program, #Rochester Public Library, #Wonder, Bioethics, mayo clinic, Mayo Clinic Center for Individualized Medicine
April 10, 2018
Celebrating 15 years of advances in genomics: a time to reflect and look forward
By Sharon Rosen
DNA sequencing and genetic testing have changed medical practice by speeding diagnosis of rare diseases for which patients have visited many different medical providers in search of answers, offering new options in prenatal testing and ushering in a new era of individualized medicine. Genomics moved to the forefront of several areas of medicine after completion […]
Tags: #15 for 15 Celebration, #cell-free DNA testing, #CIMCon18, #DNA sequencing tests, #Dr. Megan Allyse, #Dr. Myra Wick, #expanded carrier screening, #prenatal testing, #rare and undiagnosed diseases, #rare diseases, #rare genetic diseases, #reproductive health
January 29, 2018
Direct-to-consumer genetic testing–a rapidly shifting landscape
Direct-to-consumer genetic or over the counter testing emerged in the early 2000s as a means of allowing consumers to access information about their genetics without the involvement of a physician. While early models were popular with consumers, they were controversial in medical and regulatory circles. In the January 2018 issue of Mayo Clinic Proceedings authors […]
Tags: #David Robinson, #DNA analysis, #Dr. Megan Allyse, #DTC genomic tests, #medical education, #Symposium on Precision Medicine, Bioethics, biomedical ethics, center for individualized medicine, Dr. Matthew Ferber, Dr. Richard Sharp, mayo clinic
December 12, 2017
4 key things to know about the possibilities, pitfalls of gene editing
ROCHESTER, Minn. — Gene editing has captivated scientists and medical providers with tantalizing visions of wiping out debilitating inherited diseases. Could conditions like Huntington’s disease, for example, be cured by using a tool that acts as a “molecular scissors” to remove and replace disease-causing DNA? Or, would gene editing tempt some to engineer designer babies […]
Tags: #CRISPR-Cas9, #Dr. Megan Allyse, #Genetic diseases, #Inherited disease, Bioethics, gene editing, mayo clinic, Mayo Clinic Center for Individualized Medicine
August 29, 2017
Exploring ethical issues to improve reproductive health
By Sharon Rosen
New genomic technologies offer great promise for better diagnostic tests and treatments for many conditions. But they also pose new ethical questions – ones physicians and patients must address when making decisions about medical care. For example, genetic tests can determine if a couple is at risk of having a child with a genetic condition. […]
Tags: #Center for Individualized Medicine Bioethics Program, #CIMCon17, #developmental pediatric services, #Down syndrome, #Dr. Megan Allyse, #Genetic diseases, #genetic disorders, #Genomic analysis, #Individualizing Medicine 2017, #Klinefelter syndrome, #perinatal testing, #prenatal genetic testing
August 17, 2017
Lessons from Henrietta Lacks’ story: improving research collaboration with patients, communities
By Sharon Rosen
Stunned, surprised and moved – these are just some of the reactions people shared in a discussion on ethics, race and medicine after viewing the movie, The Immortal Life of Henrietta Lacks, at the Science at the Cinema event in Rochester, Minnesota held earlier this month. The film tells the compelling story of Henrietta Lacks, whose […]
Tags: #African Descendants Mayo Employee Resource Group, #CIMCon17, #Dr. LaPrincess Brewer, #Individualizing Medicine 2017, #Mary Gorfine, #Mayo Clinic Biobank, #Mayo Clinic Biomedical Ethics Research Program, #Mayo Clinic Community Advisory Board, #Mayo Clinic Community Engaged Research Advisory Board, #Mayo Clinic Office of Community Engagement in Research, #Nasra Giama, #Rochester Public Library