Items Tagged ‘Bioethics’

December 12th, 2017

4 key things to know about the possibilities, pitfalls of gene editing

By susanbuckles susanbuckles

ROCHESTER, Minn. — Gene editing has captivated scientists and medical providers with tantalizing visions of wiping out debilitating inherited diseases. Could conditions like Huntington’s disease, for example, be cured by using a tool that acts as a “molecular scissors” to remove and replace disease-causing DNA? Or, would gene editing tempt some to engineer designer babies […]

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Tags: #CRISPR-Cas9, #Dr. Megan Allyse, #Genetic diseases, #Inherited disease, Bioethics, gene editing, mayo clinic, Mayo Clinic Center for Individualized Medicine


August 29th, 2017

Exploring ethical issues to improve reproductive health

By Sharon Rosen sharonhrosen

New genomic technologies offer great promise for better diagnostic tests and treatments for many conditions. But they also pose new ethical questions – ones physicians and patients must address when making decisions about medical care. For example, genetic tests can determine if a couple is at risk of having a child with a genetic condition. […]

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Tags: #Center for Individualized Medicine Bioethics Program, #CIMCon17, #developmental pediatric services, #Down syndrome, #Dr. Megan Allyse, #Genetic diseases, #genetic disorders, #Genomic analysis, #Individualizing Medicine 2017, #Klinefelter syndrome, #perinatal testing, #prenatal genetic testing


August 17th, 2017

Lessons from Henrietta Lacks’ story: improving research collaboration with patients, communities

By Sharon Rosen sharonhrosen

Stunned, surprised and moved – these are just some of the reactions people shared in a discussion on ethics, race and medicine after viewing the movie, The Immortal Life of Henrietta Lacks, at the Science at the Cinema event in Rochester, Minnesota held earlier this month. The film tells the compelling story of Henrietta Lacks, whose […]

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Tags: #African Descendants Mayo Employee Resource Group, #CIMCon17, #Dr. LaPrincess Brewer, #Individualizing Medicine 2017, #Mary Gorfine, #Mayo Clinic Biobank, #Mayo Clinic Biomedical Ethics Research Program, #Mayo Clinic Community Advisory Board, #Mayo Clinic Community Engaged Research Advisory Board, #Mayo Clinic Office of Community Engagement in Research, #Nasra Giama, #Rochester Public Library


August 1st, 2017

Henrietta Lacks’ legacy: a conversation about ethics, race and medicine

By Sharon Rosen sharonhrosen

Henrietta Lacks’ cells – taken without her knowledge or permission in 1951 –provided the foundation for pioneering medical discoveries, including development of the polio vaccine, gene mapping, cancer treatments and much more. See this riveting story on the big screen and discuss its application to medical and ethical decisions you may face on a daily […]

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Tags: #African Descendants Mayo Employee Resource Group, #Aiyana Batton, #Dr. Brooke Watkins, #Dr. LaPrincess Brewer, #ethical issues, #Immortal Life of Henrietta Lacks, #Mary Gorfine, #Mayo Clinic Biomedical Ethics Research Program, #Mayo Clinic Community Engaged Research Advisory Board, #Mayo Clinic Office of Community Engagement in Research, #Nasra Giama, #Rochester Public Library


December 13th, 2016

Looking back and forward: ethical issues surrounding home DNA kits

By Sharon Rosen sharonhrosen

Home DNA kits are alluring for their deep dive into the unknown:  Learn your true heritage, or discover your real biological parent. For almost 15 years, people have had the opportunity to learn about their genetic makeup using at-home genetic testing kits. They’ve become so common that you see them sold on deal-of-the-day consumer websites […]

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Tags: #Center for Individualized Mediicne, #David Robinson, #DNA analysis, #DTC genomic tests, #medicaleducation, #medicalresearch, #Summer undergraduate research fellow, #SURF, Bioethics, biomedical ethics, Dr. Richard Sharp, mayo clinic


5 Things You Need to Know about Genetic Testing

April 15th, 2016

5 Things You Need to Know about Genetic Testing

By Jeff Briggs JeffreyBriggs

When you provide just one sample of your DNA, researchers are able to use it to learn more about your health history, assess your chances of contracting certain diseases and even gain a better understanding of the importance family history can play in your health outlook. It sounds futuristic, but it is all very real. […]

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Tags: Bioethics, center for individualized medicine, DNA Sequencing, Dr. Richard Sharp, gene sequencing, Genetic Testing, Genome Sequencing


December 8th, 2015

Secondary Genetic Findings: Do You Want to Know?

By Jeff Briggs JeffreyBriggs

Genomics is a field of medicine that is rapidly growing and developing. The details of a person’s genome may provide clues or sometimes direct answers that lead to treatment and improved care. As a result, this improved, individualized care is also changing the patient experience. Patients are faced with a wealth of information that appears […]

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Tags: Bioethics, biomedical ethics, Biomedical Ethics Program, Bob Nellis, center for individualized medicine, Discovery's Edge, Dr. Gregory Gores, Dr. Karl Nath, Dr. Richard Sharp, Genetic Testing, Secondary findings


November 13th, 2015

Guidelines on Sharing Individual Genomic Research Findings with Family

By Jeff Briggs JeffreyBriggs

New recommendations from the National Institutes of Health (NIH) strive to find the proper balance between research participant privacy and a family’s need for health information. As genomic testing becomes more common and as the number of participants increase, these recommendations are a needed addition to the field of genomic research. Last week, we shared […]

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Tags: Bioethics, center for individualized medicine, Dr. Barbara Koenig, Dr. Gloria Petersen, Dr. Susan Wolf, Genomic Research, individualized medicine, National Institutes of Health, NIH, Precision Medicine


November 2nd, 2015

Who Owns Your Genes?

By Jeff Briggs JeffreyBriggs

“Who Owns Your Genes?” by Diana Brazzell, executive editor at Footnote, is the third and final article in the genomic medicine series by Footnote, a website that brings academic research and ideas to a broader audience. The series has focused on how precision medicine is being used today to improve health care treatment for patients. […]

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Tags: Biobank, Bioethics, center for individualized medicine, DNA Testing, Dr. Barbara Koenig, Dr. Gloria Petersen, Genetic Testing, individualized medicine, personalized medicine, Precision Medicine, Susan Wolf


June 17th, 2015

Dr. Keith Stewart Highlights the Discoveries and Looks at the Future of Genomic Medicine

By Jeff Briggs JeffreyBriggs

Keith Stewart, M.B., Ch.B., recently appointed the Carlson and Nelson Endowed Director of the Center for Individualized Medicine, highlighted the latest discoveries in genomic research and illustrated them with patient stories to demonstrate the power of genomic medicine to supporters of Mayo Clinic’s fundraising campaign, “You Are . . . The Campaign for Mayo Clinic.” […]

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Tags: Biobank, Bioethics, cancer, center for individualized medicine, Dr. Keith Stewart, Dustin Bennett, genomic medicine, Gianrico Farrugia, individualized medicine, mayo clinic, Pharmacogenetics, Precision Medicine


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