Items Tagged ‘Bioethics’

July 1, 2020

Mayo researchers earn NIH award to study use of genetic risk scores for heart disease in diverse populations

By Susan Murphy Susan Murphy (@susanmurphy)

In recognition of their high impact work of advancing the field of genetic risk profiling for disease risk stratification, the National Institutes of Health (NIH) has awarded Mayo Clinic researchers Iftikhar Kullo, M.D. and Richard Sharp Ph.D. part of $75 million in funding over five years to improve the role of genomics in assessing and […]

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Tags: Bioethics, Cardiovascular Disease, Genetics


July 30, 2019

Community voices guide use of biobank samples in research

By Sharon Rosen Sharon Rosen (@sharonhrosen)

Article by Caitlin Doran Mayo Clinic supports biobanks — large collections of patient biological samples—near each of its three campuses in Arizona, Florida and Minnesota, with the goal of advancing research to broaden the understanding of health and disease. Paired with each biobank, Mayo fields a community advisory board (CAB), whose members are recruited from […]

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Tags: #Arizona State University, #Bioethics at the Cinema, #Center for Individualized Medicine Bioethics Program, #Mayo Clinic Biobank, #Mountain Park Health Center, #Rochester Public Library, #Sangre Por Salud Biobank, Barry Hall, Bioethics, center for individualized medicine, Community Advisory Boards, community outreach


June 24, 2019

Medicine and Artificial Intelligence: Ethical Tensions

By Sharon Rosen Sharon Rosen (@sharonhrosen)

While artificial intelligence is already transforming health care by improving diagnostic accuracy and speeding the analysis of biological and genomics data to better understand disease, there are many ethical issues that should be considered. This was the message that Mayo Clinic bioethicist Richard Sharp, Ph.D., shared with attendees at the first Mayo Clinic Artificial Intelligence […]

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Tags: #Artificial Intelligence, #Center for Individualized Medicine Bioethics Program, #Genomics data, #Mayo Clinic Biomedical Ethics Research Program, Bioethics, center for individualized medicine, computer models, Dr. Richard Sharp, Genetics, genomics, mayo clinic, Mayo Clinic Artificial Intelligence Symposium


February 21, 2019

Once a patient, now a research fellow: Kelsey Stuttgen, Ph.D. is paying compassion forward

By Sharon Rosen Sharon Rosen (@sharonhrosen)

One minute the young girl was skiing; the next she had fallen, had severe pain in her leg and was rushed to the hospital. It could have been a scary time filled with questions about the road ahead. But for Kelsey Stuttgen, Ph.D., the compassionate care delivered by her orthopedic surgeon and care team at […]

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Tags: #Dr. Edward Hicks, #Dr. Kelsey Stuttgen, #Mayo Clinic Biomedical Ethics Research Program, Bioethics, Genetic Testing, genomics, mayo clinic, Mayo Clinic Center for Individualized Medicine


July 16, 2018

Bioethics in the Cinema Program celebrates our WONDERful differences

By Sharon Rosen Sharon Rosen (@sharonhrosen)

For many young children, the first day of the school year is filled with excitement. But for August (Auggie) Pullman and his parents, the first day of fifth grade at a public school is an anxious time. That’s because Auggie has facial differences from a genetic condition called Treacher Collins syndrome and has always been […]

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Tags: #Bioethics at the Cinema, #Dr. Megan Allyse, #genetic disorders, #Mayo Clinic Biomedical Ethics Research Program, #Rochester Public Library, #Wonder, Bioethics, mayo clinic, Mayo Clinic Center for Individualized Medicine


April 10, 2018

Celebrating 15 years of advances in genomics: a time to reflect and look forward

By Sharon Rosen Sharon Rosen (@sharonhrosen)

DNA sequencing and genetic testing have changed medical practice by speeding diagnosis of rare diseases for which patients have visited many different medical providers in search of answers, offering new options in prenatal testing and ushering in a new era of individualized medicine. Genomics moved to the forefront of several areas of medicine after completion […]

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Tags: #15 for 15 Celebration, #cell-free DNA testing, #CIMCon18, #DNA sequencing tests, #Dr. Megan Allyse, #Dr. Myra Wick, #expanded carrier screening, #prenatal testing, #rare and undiagnosed diseases, #rare diseases, #rare genetic diseases, #reproductive health


January 29, 2018

Direct-to-consumer genetic testing–a rapidly shifting landscape

By Colette Gallagher Colette Gallagher (@colettegallagher)

Direct-to-consumer genetic or over the counter testing emerged in the early 2000s as a means of allowing consumers to access information about their genetics without the involvement of a physician. While early models were popular with consumers, they were controversial in medical and regulatory circles. In the January 2018 issue of Mayo Clinic Proceedings authors […]

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Tags: #David Robinson, #DNA analysis, #Dr. Megan Allyse, #DTC genomic tests, #medical education, #Symposium on Precision Medicine, Bioethics, biomedical ethics, center for individualized medicine, Dr. Matthew Ferber, Dr. Richard Sharp, mayo clinic


December 12, 2017

4 key things to know about the possibilities, pitfalls of gene editing

By Susan Buckles Susan Buckles (@susanbuckles)

ROCHESTER, Minn. — Gene editing has captivated scientists and medical providers with tantalizing visions of wiping out debilitating inherited diseases. Could conditions like Huntington’s disease, for example, be cured by using a tool that acts as a “molecular scissors” to remove and replace disease-causing DNA? Or, would gene editing tempt some to engineer designer babies […]

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Tags: #CRISPR-Cas9, #Dr. Megan Allyse, #Genetic diseases, #Inherited disease, Bioethics, gene editing, mayo clinic, Mayo Clinic Center for Individualized Medicine


August 29, 2017

Exploring ethical issues to improve reproductive health

By Sharon Rosen Sharon Rosen (@sharonhrosen)

New genomic technologies offer great promise for better diagnostic tests and treatments for many conditions. But they also pose new ethical questions – ones physicians and patients must address when making decisions about medical care. For example, genetic tests can determine if a couple is at risk of having a child with a genetic condition. […]

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Tags: #Center for Individualized Medicine Bioethics Program, #CIMCon17, #developmental pediatric services, #Down syndrome, #Dr. Megan Allyse, #Genetic diseases, #genetic disorders, #Genomic analysis, #Individualizing Medicine 2017, #Klinefelter syndrome, #perinatal testing, #prenatal genetic testing


August 17, 2017

Lessons from Henrietta Lacks’ story: improving research collaboration with patients, communities

By Sharon Rosen Sharon Rosen (@sharonhrosen)

Stunned, surprised and moved – these are just some of the reactions people shared in a discussion on ethics, race and medicine after viewing the movie, The Immortal Life of Henrietta Lacks, at the Science at the Cinema event in Rochester, Minnesota held earlier this month. The film tells the compelling story of Henrietta Lacks, whose […]

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Tags: #African Descendants Mayo Employee Resource Group, #CIMCon17, #Dr. LaPrincess Brewer, #Individualizing Medicine 2017, #Mary Gorfine, #Mayo Clinic Biobank, #Mayo Clinic Biomedical Ethics Research Program, #Mayo Clinic Community Advisory Board, #Mayo Clinic Community Engaged Research Advisory Board, #Mayo Clinic Office of Community Engagement in Research, #Nasra Giama, #Rochester Public Library


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