Items Tagged ‘Bioethics’

July 16, 2018

Bioethics in the Cinema Program celebrates our WONDERful differences

By Sharon Rosen sharonhrosen

For many young children, the first day of the school year is filled with excitement. But for August (Auggie) Pullman and his parents, the first day of fifth grade at a public school is an anxious time. That’s because Auggie has facial differences from a genetic condition called Treacher Collins syndrome and has always been […]

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Tags: #Bioethics at the Cinema, #Dr. Megan Allyse, #genetic disorders, #Mayo Clinic Biomedical Ethics Research Program, #Rochester Public Library, #Wonder, Bioethics, mayo clinic, Mayo Clinic Center for Individualized Medicine


April 10, 2018

Celebrating 15 years of advances in genomics: a time to reflect and look forward

By Sharon Rosen sharonhrosen

DNA sequencing and genetic testing have changed medical practice by speeding diagnosis of rare diseases for which patients have visited many different medical providers in search of answers, offering new options in prenatal testing and ushering in a new era of individualized medicine. Genomics moved to the forefront of several areas of medicine after completion […]

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Tags: #15 for 15 Celebration, #cell-free DNA testing, #CIMCon18, #DNA sequencing tests, #Dr. Megan Allyse, #Dr. Myra Wick, #expanded carrier screening, #prenatal testing, #rare and undiagnosed diseases, #rare diseases, #rare genetic diseases, #reproductive health


January 29, 2018

Direct-to-consumer genetic testing—a rapidly shifting landscape

By Colette Gallagher colettegallagher

Direct-to-consumer genetic or over the counter testing emerged in the early 2000s as a means of allowing consumers to access information about their genetics without the involvement of a physician. While early models were popular with consumers, they were controversial in medical and regulatory circles. In the January 2018 issue of Mayo Clinic Proceedings authors […]

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Tags: #David Robinson, #DNA analysis, #Dr. Megan Allyse, #DTC genomic tests, #medical education, #Symposium on Precision Medicine, Bioethics, biomedical ethics, center for individualized medicine, Dr. Matthew Ferber, Dr. Richard Sharp, mayo clinic


December 12, 2017

4 key things to know about the possibilities, pitfalls of gene editing

By Susan Buckles susanbuckles

ROCHESTER, Minn. — Gene editing has captivated scientists and medical providers with tantalizing visions of wiping out debilitating inherited diseases. Could conditions like Huntington’s disease, for example, be cured by using a tool that acts as a “molecular scissors” to remove and replace disease-causing DNA? Or, would gene editing tempt some to engineer designer babies […]

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Tags: #CRISPR-Cas9, #Dr. Megan Allyse, #Genetic diseases, #Inherited disease, Bioethics, gene editing, mayo clinic, Mayo Clinic Center for Individualized Medicine


August 29, 2017

Exploring ethical issues to improve reproductive health

By Sharon Rosen sharonhrosen

New genomic technologies offer great promise for better diagnostic tests and treatments for many conditions. But they also pose new ethical questions – ones physicians and patients must address when making decisions about medical care. For example, genetic tests can determine if a couple is at risk of having a child with a genetic condition. […]

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Tags: #Center for Individualized Medicine Bioethics Program, #CIMCon17, #developmental pediatric services, #Down syndrome, #Dr. Megan Allyse, #Genetic diseases, #genetic disorders, #Genomic analysis, #Individualizing Medicine 2017, #Klinefelter syndrome, #perinatal testing, #prenatal genetic testing


August 17, 2017

Lessons from Henrietta Lacks’ story: improving research collaboration with patients, communities

By Sharon Rosen sharonhrosen

Stunned, surprised and moved – these are just some of the reactions people shared in a discussion on ethics, race and medicine after viewing the movie, The Immortal Life of Henrietta Lacks, at the Science at the Cinema event in Rochester, Minnesota held earlier this month. The film tells the compelling story of Henrietta Lacks, whose […]

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Tags: #African Descendants Mayo Employee Resource Group, #CIMCon17, #Dr. LaPrincess Brewer, #Individualizing Medicine 2017, #Mary Gorfine, #Mayo Clinic Biobank, #Mayo Clinic Biomedical Ethics Research Program, #Mayo Clinic Community Advisory Board, #Mayo Clinic Community Engaged Research Advisory Board, #Mayo Clinic Office of Community Engagement in Research, #Nasra Giama, #Rochester Public Library


August 1, 2017

Henrietta Lacks’ legacy: a conversation about ethics, race and medicine

By Sharon Rosen sharonhrosen

Henrietta Lacks’ cells – taken without her knowledge or permission in 1951 –provided the foundation for pioneering medical discoveries, including development of the polio vaccine, gene mapping, cancer treatments and much more. See this riveting story on the big screen and discuss its application to medical and ethical decisions you may face on a daily […]

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Tags: #African Descendants Mayo Employee Resource Group, #Aiyana Batton, #Dr. Brooke Watkins, #Dr. LaPrincess Brewer, #ethical issues, #Immortal Life of Henrietta Lacks, #Mary Gorfine, #Mayo Clinic Biomedical Ethics Research Program, #Mayo Clinic Community Engaged Research Advisory Board, #Mayo Clinic Office of Community Engagement in Research, #Nasra Giama, #Rochester Public Library


December 13, 2016

Looking back and forward: ethical issues surrounding home DNA kits

By Sharon Rosen sharonhrosen

Home DNA kits are alluring for their deep dive into the unknown:  Learn your true heritage, or discover your real biological parent. For almost 15 years, people have had the opportunity to learn about their genetic makeup using at-home genetic testing kits. They’ve become so common that you see them sold on deal-of-the-day consumer websites […]

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Tags: #Center for Individualized Mediicne, #David Robinson, #DNA analysis, #DTC genomic tests, #medicaleducation, #medicalresearch, #Summer undergraduate research fellow, #SURF, Bioethics, biomedical ethics, Dr. Richard Sharp, mayo clinic


5 Things You Need to Know about Genetic Testing

April 15, 2016

5 Things You Need to Know about Genetic Testing

By Jeff Briggs JeffreyBriggs

When you provide just one sample of your DNA, researchers are able to use it to learn more about your health history, assess your chances of contracting certain diseases and even gain a better understanding of the importance family history can play in your health outlook. It sounds futuristic, but it is all very real. […]

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Tags: Bioethics, center for individualized medicine, DNA Sequencing, Dr. Richard Sharp, gene sequencing, Genetic Testing, Genome Sequencing


December 8, 2015

Secondary Genetic Findings: Do You Want to Know?

By Jeff Briggs JeffreyBriggs

Genomics is a field of medicine that is rapidly growing and developing. The details of a person’s genome may provide clues or sometimes direct answers that lead to treatment and improved care. As a result, this improved, individualized care is also changing the patient experience. Patients are faced with a wealth of information that appears […]

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Tags: Bioethics, biomedical ethics, Biomedical Ethics Program, Bob Nellis, center for individualized medicine, Discovery's Edge, Dr. Gregory Gores, Dr. Karl Nath, Dr. Richard Sharp, Genetic Testing, Secondary findings


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