Items Tagged ‘CFF’

Lessons From Disease Advocacy Organizations

November 25, 2014

Lessons From Disease Advocacy Organizations

By Richard Sharp, Ph.D. Richard Sharp, Ph.D.

    The Cystic Fibrosis Foundation (CFF) recently announced that through the sale of the Foundation’s royalty rights to new therapies developed in collaboration with Vertex Pharmaceuticals Inc., they received $3.3 billion dollars. This is an unprecedented amount of money to be raised by a disease advocacy organization through this type of transaction and highlights […]

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Tags: Bioethics, center for individualized medicine, CFF, Cystic Fibrosis Foundation, DNA, DNA Sequencing, dna test, DNA Testing, gene sequencing, Genetics, Genomic, genomic medicine


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