Items Tagged ‘Cystic Fibrosis Foundation’

November 25, 2014

Lessons From Disease Advocacy Organizations

By Richard Sharp, Ph.D. Richard Sharp, Ph.D. (@richsharp)

    The Cystic Fibrosis Foundation (CFF) recently announced that through the sale of the Foundation’s royalty rights to new therapies developed in collaboration with Vertex Pharmaceuticals Inc., they received $3.3 billion dollars. This is an unprecedented amount of money to be raised by a disease advocacy organization through this type of transaction and highlights […]

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Tags: Bioethics, center for individualized medicine, CFF, Cystic Fibrosis Foundation, DNA, DNA Sequencing, dna test, DNA Testing, gene sequencing, Genetics, Genomic, genomic medicine

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