Items Tagged ‘#National Tay-Sachs & Allied Diseases Association’

January 9, 2018

Twins take action: diagnosed with Tay-Sachs, sisters raise awareness to find treatment and a cure

By Sharon Rosen Sharon Rosen (@sharonhrosen)

Many people have moments when they are clumsy – accidentally spilling things or stumbling when they walk. In hindsight, these events were early signs that twins Katie and Allie Buryk had late onset Tay-Sachs disease, a rare genetic disorder. But it wasn’t until one day when the two sisters were home from college that their […]

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Tags: #Allie Buryk, #Dr. Marc Patterson, #Katie Buryk, #Mayo Clinic Individualized Medicine Clinic, #National Tay-Sachs & Allied Diseases Association, #rare diseases, #rare genetic disorders, #Tay-Sachs disease, center for individualized medicine, Genetic Testing, mayo clinic, medical research


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