Items Tagged ‘Richard Sharp’

November 25, 2014

Lessons From Disease Advocacy Organizations

By Richard Sharp, Ph.D. Richard Sharp, Ph.D. (@richsharp)

    The Cystic Fibrosis Foundation (CFF) recently announced that through the sale of the Foundation’s royalty rights to new therapies developed in collaboration with Vertex Pharmaceuticals Inc., they received $3.3 billion dollars. This is an unprecedented amount of money to be raised by a disease advocacy organization through this type of transaction and highlights […]

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Tags: Bioethics, center for individualized medicine, CFF, Cystic Fibrosis Foundation, DNA, DNA Sequencing, dna test, DNA Testing, gene sequencing, Genetics, Genomic, genomic medicine

March 27, 2014

ACMG Annual Clinical Genetics Meeting 2014 Schedule

By Mystery User

This year at the ACMG Annual Clinical Genetics Meeting, Richard Sharp, Ph.D., director of the Bioethics Program in the Mayo Clinic Center for Individualized Medicine, will participate on Saturday, March 30, in a panel discussion entitled “Duty to Recontact” in the Genomics Era: Interdisciplinary Perspectives and Open Forum. “Duty to Recontact” addresses providers’ obligations to […]

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Tags: ACMG, Annual Clinical Genetics Meeting, center for individualized medicine, dna test, DNA Testing, gene sequencing, genome science, genomic medicine, genomics, individualized medicine, Institute of Medicine, mayo clinic

December 12, 2013

Bioethics Radio

By Mystery User

On Saturday, Dec. 7, the director of the new Mayo Clinic Biomedical Ethics Program, Richard Sharp, Ph.D., joined Mayo Clinic Radio for a discussion of the ethical questions brought about by advances in biology and medicine. One clear question was a Myth or Matter of Fact:  Insurance companies can use your genetics as a basis for determining […]

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Tags: Bioethics, center for individualized medicine, individualized medicine, mayo clinic, personalized care, personalized medicine, Podcast, Richard Sharp

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